answer:Can you call the office and discuss your concerns with the nurse? What do you mean by want to know ‘what to do”? Do you means the basics like diet, meds, exercise, etc? Did not your doctor discuss how to live with Lupus with you? Perhaps the nurse can hook you up with a patient Lupus support group, either online, or even better, meetings with real people, where you can share your concerns and anxieties, which must be (understandably) considerable. Here’s one Here’s another And one more