Abroad, cooperation and mutual assistance of patients with the same diagnosis is common, in the Czech Republic this type of communication is still lacking. These support groups serve as a source of information and support. Patients can exchange experiences and feel accepted by others. not every patient wants this support - on the contrary, the more resilient patients directly reject it and do not require understanding or even compassion from the environment, on the contrary, such an approach is unpleasant for them. and the weaker the pity will not help at all, it will rather harm. in diseases with symptomatic pain, any experience is non-transferable - what a patient, it's another treatment. Diagnosis of fibromylagia is not a Czech problem, but a problem of the medical community globally, as I have already explained. In contrast to the Czech Republic / Slovakia, the activities of charitable organizations are much more widespread abroad, focusing on specific diseases (especially cancer), but the medical community has nothing to do with it. it is more of an asset to churches and, last but not least, to various visionaries / saviors / healers / counselors / charlatans who are more or less sponsored by various pharmaceutical lobbies. I understand the people who are in pain, I understand those who want to help, I also understand those who do not want to help. but the sites in question have nothing to do with it, so somehow I'm missing out on your efforts, Mom. let's not try to force something that is in the world, but it's not close to our mentality and habit - the last 25 years are proof that not everything we didn't have at home is good (fried tarantulas are good too - and do you eat them?). (tuxedo)