If you have firsthand experience with and/or professional knowledge about Autoimmune Disorder or Related Disease, would you please share it?

1 Answer

Answer :

answer:I figured I’d put my personal story as a comment, to minimize the wall-of-text effect of the details above. For several years, I would inconsistently get raised welts with sun exposure, I’ve had undiagnosed mystery rashes (some itchy, some not) and consistently high eosinophil counts. In the fall of 2011, I started having heel pain in both feet, and as it got worse, I self-diagnosed it as plantar fasciitis, and heel spurs were confirmed by an orthopedic hand and foot specialist. But when it didn’t respond well to traditional treatments, I started to suspect there was an internal cause. Around that time, I developed the second, and worst, mystery rash, that started as a couple dots on my shins, then on my forearms and eventually spread over much of my body. It would start to diminish then flare back up, but never on a day off when I could go to the dermatologist; so by he time I decided I should go anyway and got an appointment, it was nearly gone, so they could only speculate. After about 6 months of dealing with my bad feet and having excruciating pain when walking, I started to notice that my hands were curling up – like my tendons were shrinking. I had a regular physical scheduled, so I mentioned it to my GP, who tested me for Lyme’s Disease (common where I live, but it was negative) and tested my Rheumatoid factor and ESR that measures inflammation – both of those were a little bit above normal, so it was recommended that I see a Rheumatologist. They ran more specific blood work, but none of that was beyond the norms – I have something wrong with me—but we have no idea what it is. The Vitamin D was low, so I was told to take that, and we started me on one of the oldest and mildest drugs for Rheumatoid Arthritis, sulfasalazine. At first, I did well, and only realized after it was gone, that I had been constantly feeling like I was running a low-grade fever. The heel pain improved, along with orthotic footwear and continued stretching. After about a year, I started feeling worse again, so we upped the dose a bit and it was pretty good for a while! Now another year’s gone by and the disease is still progressing and hitting my hip joints, too

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