answer:Without knowing the specifics of your condition, I would say this: Neurology is tough because there are few neurologists and lots of neurology patients. Then to add to it, they do often work in a “group” setting (usually because that’s how the hospitals want it). We have had this same type of issue with our son. My best suggestion is to research your condition with your state on a Net search and see if there is a charity/group involved that could assist you. We’ve gotten luckier with good referrals not from our primary care physician, but instead through a therapist and through a psychologist. Both of whom have suggested that when we call for appointments we state specifically that we will set up an appointment only if the physician will have a phone consult with us prior to the set appointment time. This has indeed saved us both time and money. We’ve been able to state our issues ahead of time, and in some cases we’ve then been given a different referral to move on to. In other cases, the doctors have been able to set up a better time period to see our son (he likes things quiet/less distractions) so that they can get a better sense of who he is and what his needs are. I would say, if your condition is rare, you definitely need a phone consult before going to any appointment.